Is this it??? (SSSS)
I have a friend named Elizabeth… She and I were fairly good friends, then the two of us got married at roughly the same time, then she moved to Alaska. Both our marriages and the move slowed down the friendship quite a bit. But, I’m happy when I see her, which is about once a year, when she visits family in town and visits our church, too, where she used to attend. (She also married a cousin of my pastor.)
Facebook has increased our contact of late, which has been nice. In fact, when Elizabeth and I were talking after church, her daughter appeared to be listening intently to our conversation, then she burst out, “Are you Karen?” I admitted to that fact, and Elizabeth explained, “She recognizes you from Facebook.”
Elizabeth is a doctor. She used to be Ethan’s pediatrician when he was a baby, and I — for selfish reasons — mourned her move, because not only is she a fabulous, brilliant doctor, but I could always trust her to tell me the TRUTH, and to give me a perspective that is Godly-wisdom-based, not just medically-based. (For instance, she was the first doctor to tell me straight out that the pill is an abortifacient, which most all doctors will pussyfoot around or flat-out deny.)
Yesterday, after church, she came up to me, telling me that she had had a vision of me during worship. She almost didn’t tell me, and, oh! I’m so glad she did! She saw me with a hobo’s bag full of tin cups that I kept messing with, and God was standing off to the side with a gold, jewel-encrusted goblet, that was full of healing. The idea was that God had the goblet for me, and I kept messing with the tin cups.
In other words, I keep TINKERING with things, when He has HEALING.
I totally took that, on behalf of Fiala.
What made that especially significant is that yesterday was the day that some specific ministry prayer was to be done over Fiala! Such timing. We did get some prayer, though the team (for one reason or another) was only half its originally-intended size, and it was hard to pray because Fiala was VERY fussy and just wanted to go run.
Elizabeth only got a brief look at Fi, and now she and her family are off to California for a couple of days, but she also saw my pastor’s family for quite a while yesterday, and she told my pastor’s wife that she is quite certain that Fiala has Staph Scalded Skin Syndrome.
I started to Google it, but stopped, because the fear started to creep back in when I read that, often, in babies less than a year, SSSS is fatal. Fiala is now 14 months, but this is the same thing — if it is it — that she’s been struggling with, in one form or another, since she was two months old.
Although this little girl, in England, who was diagnosed with SSSS, has patches that appear IDENTICAL to Fiala’s:
I still have lots of questions for Elizabeth-the-doctor, for some of the things that Fi has doesn’t quite fit the symptoms of SSSS, from what I can tell. (Especially that patches from SSSS are supposed to heal in 5-7 days, and Fiala has had some of the same patches for literally months on end.)
Still, when I was praying this morning, I felt very confident that I am to trust Elizabeth, and that God gave her that vision of me, in order to increase my confidence in both her ability to hear from God, and in her medical advice, because right now, my trust-level in doctors is pretty low.
I’m not going to hunt her down in California to talk about it, but she did suggest (through our pastor’s wife) that I
- stop breastfeeding and start her on goat milk (she suggested a 2-week trial, in which I also pump, to keep my supply up, and store the milk) — this is because it’s likely that I am the continuing source of staph bacteria
- give her warm baths to which 2 cups of white vinegar have been added, as Staph (and other bacteria) can’t live in an acidic environment
I have done the second, but not the first yet. Before I stop breastfeeding, I want to talk directly with Elizabeth about that.
She is also convinced that while Fiala may indeed have some underlying food allergy issues, it is extremely unlikely that she is allergic to EVERYTHING, which is where she’s currently at — reacting to EVERYTHING. Elizabeth believes that staph in her body (maybe bacterial enterocolitis?) is interfering with the digestion process, and it’s the staph that is causing most of her symptoms. Interestingly, people with bacterial enterocolitis can develop carbohydrate intolerances, and it’s to various carbohydrates that Fiala has always reacted most violently, which is why her (no-longer) allergist thought she may have some sort of sugar intolerance.
Elizabeth also said that while antibiotics might be needed, there are other things we can do to eliminate the staph and treat the symptoms. It’s the “other things” that I’m really interested in right now… It’s hard to wait until we can talk!!
Part of me doesn’t want to get my hopes up, but the other part — especially due to the circumstances — is quick to think, “This is it! This is the answer to our prayers! This is what Fiala’s been struggling with, her whole sweet little life!!!”
Posted on December 28, 2009, in Allergies, Babies, Christianity, Digestive Woes, Encouragement, Friendships, Medical Stuff, Missions and ministry, Motherhood, Prophetic, Scary stuff, The Kids, Vineyard Phoenix, Worship. Bookmark the permalink. 14 Comments.