Milk & Soy Protein Intolerance
Guess what I’m drinking?
Black coffee with raw sugar. I can’t remember the last time I willingly drank black coffee.
But, there’s a reason: She’s eight months old, and she looks like this:
Last night, I was perusing the recent comments that people had left here, and one kind soul mentioned something called Milk & Soy Protein Intolerance. Info on the web is somewhat scanty about it — more anecdotal than “official” — but what was there fit Fiala to a “T.” She doesn’t have ALL of the symptoms, which can vary from kid to kid.
- Blood, water or mucous containing stools – YES. Watery stools all the time, mucous sometimes, never blood. I chalked it up to the fact that she’s still almost exclusively breastfed because I’m afraid to feed her anything, since I hadn’t figured out what was irritating her. However, my husband mentioned, some days ago, that he thought Fiala’s stools were way too watery. And this morning, she had her first formed stool.
- weight loss – no, but I had been noticing that she’s not quite as chunky as she has been.
- chronic congestion – YES. Fiala is definitely chronically congested, both in her lungs and sinuses, but I chalked that up to lingering RSV symptoms, which the docs told me may happen. Same with…
- asthma – YES. Fiala doesn’t have bad asthma, but we have had to give her 1-2 breathing treatments per week, ever since she had RSV in February.
- repeated vomiting – No, thank God.
- gastroesophageal reflux (GER) – No, thank God.
- eczema and/or skin rashes – Um, YES, definitely.
- refusing to eat or comfort eating (eating all the time
to soothe the stomach) – Maybe comfort eating. At eight months, when she should be able to have at least 4 hours between feedings, she still nurses at least every three hours, and she’s back to waking up in 1-2 times in the middle of the night, when she had been sleeping through the night a good 8-10 hours.
- irritability or colic-like behavior – She’s just such a good-natured, happy baby, but she is definitely crabby in the late afternoon and early evening, which many babies are. So, I don’t know if that would qualify as a “yes” or not.
When I discover something regarding my kids’ health and I squeal, “This is it!” my husband is usualy much more cautionary, not wanting me to jump to conclusions, or get my hopes up. But, after he read the list of MSPI symptoms, he really is thinking, “This is it!”
For the last 9 days, I’ve been soy free, but when back on dairy after a few days because it seemed that, if soy was the problem, I could have dairy! But her eczema flared up again, so I went off of dairy… except for half & half in my coffee.
Upon waking this morning, Fiala’s skin looked the best it has in months.
I did have half & half in my first cup of coffee, but, late this morning, after she’d nursed, her cheeks were back to looking red and very irritated again (though not as bad as two weeks ago or so). So, feeling like a bad mom because of how difficult this is for me, I had to admit that, likely, she needs me to be totally dairy- and soy-free. ~sigh~
Y’all — if you’re still reading — are likely tired of reading about Fiala’s skin. But, I must say that I am nearly giddy with hopefulness today, after reading up about MSPI. The best news is that most babies outgrow it by 18-24 months!
That said, I’m now wondering if Wesley’s eczema, which we’ve never been able to totally eradicate, is tied to soy allergy. He hardly gets any soy, but maybe it’s just enough to give him eczema. His eczema is primarily on his calves, oddly enough.
Weirdly enough, though a small intestine biopsy isn’t often done for MSPI (maybe because kids outgrow it so quickly??), when it is done, there are changes to the villi, similar to those with celiac disease (“The degree of villous atrophy may be similar to that found in celiac disease.“)
I think I will cleanse my cupboards of all soy products. Lots of our favorites have soy oil or soy lecithin in them. According to what I’ve read, many children with MSPI can tolerate the oil or lecithin, but since Fiala’s first unmistakable reaction was to soybean oil, I’m eliminating those, too. Tater Tots, Ranch Style Beans, Lay’s Stax, my nearly-new bottle of soy lecithin, Smart Balance… 😦 We’ll miss you, old friends. But, it’s worth it. I can’t wait to post pictures of my newly-healthy baby in another week or two. 😀