Rollercoaster skin issues :(
I have been really hoping that Fiala’s severe eczema sores could be eradicated by eliminating one substance (likely food) from her diet. Then, after I figured out that both soy and milk were causing her problems, I thought, “That’s OK! Two things! Very manageable.”
I had not been eating eggs, as I took them out of my diet (along with dairy and tree nuts, plus, I’m already gluten-free, due to celiac disease, and peanut-free — due to my 7yo son’s anaphylaxis we can’t have ’em in the house) when we were completely in the dark as to what would help her. I started eating eggs again, and there was no change to her skin. Great!
Then, nuts. Darn. Nuts seem to be a problem. Her skin flared up badly for a few days after me eating both almonds and pecans. I stopped, and after a few days, her skin settled back down. So, I’m gluten-free, dairy-free, soy-free, and nut-free, along with her.
Then, yesterday morning, her skin broke out TERRIBLY. I had given her banana chunks and Rice Chex for breakfast. I don’t think rice causes any problems for her… but now, I’m thinking, “Is it banana? Or, is it the pork I had with dinner last night???” I don’t know. 😦 When she seems to be having reactions with both what I’m eating, and what she’s eating… and with the knowledge that some foods cause a quick reaction, and some bad reactions may not show up for hours, or even days… it all just seems overwhelming, like will we ever find out what’s wrong with her???
All I can say is that, when we first ID’ed soy and milk as major problems, we thought we might be able to cancel tomorrow’s appointment with the pediatric dermatologist (who is going to do micro injections to test for allergens). Now, I’m glad we’re going, because I feel at a near-total loss again… I hate that powerless feeling, looking at her oozing and bleeding cheeks, and being unsure as to what caused it. 😥
The only good news — if there is any here — is that I think my husband might be more supportive of me doing a total elimination diet in order to pinpoint the problems. Previously, he thought that was just too extreme. I certainly don’t relish the idea of living on lamb and pears for weeks on end — I normally don’t even eat lamb; out of conscientious objection I don’t eat any baby animals, though I guess store-bought lamb isn’t actually lamb, but mutton (to which I regularly reply, “Then why don’t they call it mutton?”). But, I’m ready to try just about anything, even if it’s to my total inconvenience, and my family’s inconvenience, as well.
In addition, I find myself feeling a bit guilty. I don’t know quite how to explain it. A man at church on Sunday, after asking what was wrong with Fiala’s skin, said something like, “Man! There’s something wrong with ALL of your kids!” To which I laughingly replied, “Not Ethan! Ethan’s normal.” But I really didn’t feel laugh-y. I feel like with my husband’s severe childhood asthma, and my childhood eczema and environmental allergies, plus my celiac disease… And my husband’s alopecia areata… Not that alopecia is genetic, but we both have fairly serious autoimmune problems, both in ourselves, and in our family history. It’s like we created the perfect storm of bad genes to pass down to our kids. 😦
I’ll let y’all know how tomorrow’s appointment goes.