Schooling with “disabilities”, antibiotics, Silly Putty, dinner guests that make me nervous, and a storm

  • I am so thankful that, as homeschoolers, we don’t have to wrestle with other parents, teachers, school administrators, district policies, etc., to tend to my nearly 8yo son’s severe peanut allergy and celiac disease.  I’m part of one Yahoo group for Phoenix-area families with celiac disease, and a different one for those with severe allergies.  This time of year, the biggest topic is how to keep kids safe at school — tips on dealing with teachers, copies of letters to send home to other classroom parents, detailed descriptions of 504 plans, pleas for help…  Each time, I want to respond, “OR, YOU COULD JUST HOMESCHOOL!” but I don’t.  People often comment to me, “I don’t know how you do it!” regarding homeschooling.  I respond similarly to them.  There is no way I would want to trade the peaceful, simple process of homeschooling — with barely a thought for Wesley’s “disabilities” — for the fear and fiasco of schooling him in a classroom setting.  Plus, it would be all that times two because Grant has a learning disorder (very akin to Asperger’s Syndrome, but without the obsessions, and with fine and gross motor skill problems), and we’d need a 504 plan for him, too, and an additional IEP.  No way, thankyouverymuch.
  • I caved.  After treating Fiala’s staph infection with honey for three days, I gave up.  Did it work?  I think so.  But, the… peripherals were too much for me.  The longer we had her bandaged, the more annoyed and less cooperative she got with the process of nursing her wounds.  Even with keeping long pants on her, she kept pulling the bandages off, which meant I was repeating the process about 4x/day, and changing her pants 2-4x/day because they became sticky with honey.  AND, she developed a contact rash from the bandages — of which I tried three different kinds (plastic tape with nonstick pads, paper tape with gauze pads, and big Band-Aids — with and without additional gauze).  So, on the back of her legs, in addition to the “normal” eczema, and the lesions from staph infection, she now has an additional red and prickly rash from the dumb bandages.  There probably is some kind of non-adhesive sleeve-style bandage that would work for her, but I didn’t feel like I had time to research that and find it and try it.  So, I went and picked up the Omnicef prescription last night.
  • To add to the files of “Things I Never Thought I’d Have to Do as a Parent,” please add:  irrigating my 10yo son’s ear to get out a wad of Silly Putty.  At first, I thought it was a big chunk of wax, but when it finally came out, I saw it was a pebble-sized ball of Silly Putty.  He insists that he has no idea how it got in there.  Hm.  Then, he “remembered” trying to make a casting of his ear.  All of this with Silly Putty that was not his, and that he was not supposed to touch.
  • We are having dinner guests over tomorrow night, and I am irrationally crabby about it.  It’s a family with whom Martin used to live, before we got married.  I have great appreciation for them as a family, but the wife — really, a fantastic woman in a multitude of regards — has always made me incredibly nervous.  She’s the kind of lady who brilliantly excels at all the things I do poorly.  She’s very ladylike, and her home looks like a museum.  A spotless museum.  A spotless museum that looks like it was decorated by Martha Stewart.  I am confident in my cooking abilities;  I’m sure everyone will enjoy the food.  Their youngest daughter gets along wonderfully with my boys.  The husband is dear and thoughtful and funny…  There are so many reasons to tell me that it will be a good evening, but I’m still having a hard time with it, to the confusion and consternation of my husband, who is trying — but not succeeding — to understand my difficulty with the whole thing.  I “just” need to be hyper-alert to keep my attitude and racing heart in check, and be humble and accept my deficiencies.  That’s hard.  😦
  • It stormed hard last night.  Wonderful.  I love dark nights full of lightning and pounding thunder and driving rain and the overcast, drippy days that follow.
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About Karen Joy

I'm a partially-homeschooling mother of six -- 3 boys ages 19, 17 and 15 years old, and three girls: 11, 8, and 3. I like birding, reading, writing, organic gardening, singing, playing guitar, hiking, the outdoors, and books. I very casually lead a very large group of homeschooling families in the Phoenix area. I have a dear hubby who designs homes for a local home builder and who is the worship pastor of our church. I live in the desert, which I used to hate, but now appreciate.

Posted on August 13, 2009, in Allergies, Babies, Character Development, Family, Homeschooling, Medical Stuff, Motherhood, Nonverbal Learning Disorder, The Dear Hubby, The Kids, Weather. Bookmark the permalink. 5 Comments.

  1. Sure wish I could help you, Karen. You are going through some very difficult situations and I wish there were words to comfort you. I hope that your dinner time with your guests will turn out to be pleasantly nice and no matter how short coming you feel, know that it is to the Lord we do whatever He has given into our hands to do. No matter how hard the work is to do, we can glorify Him by praising him in doing our work as unto Him. Lean on Him and He will give you strength to get you through. Galatians 6:9 says, “And let us not be weary in well doing: for in due season we shall reap, if we faint not.” Philippians 4:4-7 is also a good scripture to keep in mind. I’ll be praying for you.

  2. I can relate to points 1,2 and 4!
    I am fearful of point 3!
    I wholeheartedly agree with point 5!

    🙂

  3. My house is not a museum… and I think that makes people more comfortable there… as long as there isn’t too much dirt on the floor [smile].

    I think the directions for Silly Putty say that you’re not supposed to put it up your nose or in your ear…

    I’m sorry to hear the honey was such a bust. …and I wish I had something more to say.

    Lord, I ask that You would continue to give wisdom and insight into this situation. Heal Fiala. Amen.

    ~Luke

  4. thanks for this post. contemplating school because the developmental pediatrician and pastor both said we should ‘do drugs and school’ for DS (aspergerish.) i felt guilty but my husband (who also rocks) said …um..remember all the IEPs and stuff….and the stress.

    as for the ‘i don’t know how you do it’ comment… we were discussing that at Bible study where the only moms in attendance were homeschooling moms of special needs kids. we all said we find that kind of offensive in an offbeat way. we know people don’t MEAN it that way but sometimes we want to say back..i don’t know how YOU do it!

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