The cardiologist, Whole Foods, tears, and dinner
I had a cardiologist appointment yesterday, as a follow up to the echocardiogram I had, plus my wearing a 30 day event/loop recorder (which I actually only wore for 22 days).
Structurally, my heart is SOUND. That is a great relief. He listened to my heart again from the front and the back, in many different places, cocking his head as he said, “It still sounds like you have mitral valve prolapse.” But the echo came back normal, so he’s trusting that. He said I likely do have Wolff Parkinson White syndrome (five nerves going into my heart, instead of four), but right now, though that causes a consistently electrically-odd electrocardiogram pattern, it’s only causing my heart to do a variety of weird things 1-2x/day, according to the event monitor. He said that I had three options:
- Do nothing for now.
- Try medication to regulate my heart
- Have surgery to cauterize the offending extra nerve in my heart.
He suggested option #1, with which I heartily agreed. Heartily! Hah. No pun intended.
He does want me to keep a little notebook journal for the next six months, and document whenever I feel anything weird, and what I was doing at the time, etc. Oddly enough, at least half of the “events” my heart had was when I was sleeping. But, I’ll give it a go.
On the way home, I stopped at Whole Foods to buy some grains that are not wheat, rye, barley, oats, rice, or sorghum. Since either Fiala or I can’t have those — plus no potatoes — I must find some alternative carb/starch for our meals, or we’ll be eating corn with every meal. Whole Foods is pricey and distant from my house, but I know that they have a great bulk department… so, I bought raw buckwheat groats, roasted buckwheat, amaranth, hulled millet, and polenta. I also bought some way-expensive roast beef from the deli, but I knew it was safe because the girl who roasted it that morning — seasoned with just salt and pepper — was the one who sliced it for me, as well. In many, many ways, I love Whole Foods, but we would go broke if it was right around the corner.
As Fiala (who had accompanied me to the doctor and the store) and I drove home, I cried. I don’t know if I felt more sorry for her, or for myself, which made me cry more, that I could be so self-centered to worry about what in the world I was going to eat, and boo-hooing that Martin and the other kids were at home eating gluten-free Pei Wei, and my back was hurting so bad (I threw it out on Monday — a different story altogether), and I was so tired, and all I wanted was to go home and lay down, but I knew I had a good hour on my feet ahead of me, and my baby’s skin and health is in such shaky condition… Yes, we have hope for her future, and that is very gratifying. However, in the meantime, we have days or weeks or whatever, while she is still in great discomfort, risk for infection, etc… And, the last couple of days, a yeast-based infection EXPLODED in her diaper area, and though I’m treating that with miconazole, and having her spend as much time bare or with an uncovered cloth diaper (plus treating her with aloe vera gel mixed with the contents of a probiotic capsule — don’t know if that will do any good on the outside, but I’m desperate) she is beet red from her belly button around to the top of her bum. Poor baby. 😦
I got home, and pulled out some beef broth from the freezer. Unwisely, I had put it in a gallon Ziploc freezer bag, so it took forever to thaw in the microwave. But, I reflected that, when I made it, two months ago, I thought, “Well, I wish I had flavored this with garlic and veggies… too bad it’s just plain from boiled bones.” Hah! God provides and prepares, even when we’re not aware of it. It is perfect for what I need now! So, I made buckwheat (you make it like rice — double the broth to the grain) with my “regrettably” seasonless beef broth, paprika, dry mustard, red pepper, parsley, and salt. I also steamed some green beans, and ate some of my roast beef. The buckwheat was GREAT! I didn’t miss the garlic at all.
In fact, I’m eating some buckwheat now. My 3yo daughter Audrey just came by to compel me to share with her whatever was in my bowl. She sniffed, and said accusingly, “That’s dinner!” and walked away, like I purposefully was eating “dinner” at eleven in the morning just to twerk her off. 😀
Edited to add: P.S. I filled the prescription for Augmentin, but for now, I’m not giving it to her. Just being able to bathe her again (we couldn’t from Mon-Thurs morning), plus putting the triamcinolone (steroid cream — not desirable, but better than another 10 days on abx), plus doing the wet/dry wraps has already greatly improved her legs. I will keep a close eye out for infection, but unless they’re truly infected, I don’t want to use more abx, especially since she’s having such a problem with yeast in her diaper area. Hmmm… I think I’ll try the probiotics in a CUP with water, as she won’t drink out of a bottle, and I’ve only let her toy with a “real” cup, up to now. Maybe we can get some in her system SOMEHOW. Or, maybe I’ll mix it with water and put it in a syringe — not an injection syringe, just a dosing syringe… Why didn’t I think of this before?
Posted on August 21, 2009, in Allergies, Babies, Celiac Disease, Digestive Woes, Family, gluten-free, Medical Stuff, Motherhood, Sad Things, Shopping, The Kids, Whining. Bookmark the permalink. 13 Comments.