E-mail to my pastor’s wife
We have a e-mail prayer loop in our church, usually overseen by the pastor’s wife, who, in my opinion does TOO MUCH, but that’s because she’s willing, competent, and caring. 🙂 I am usually hesitant to send in something for prayer, because there are so many people with other, greater needs, like brain cancer, and heads of families with no job, and people getting major surgery, that sort of thing. But, today, after (WARNING: TMI ON POOP AHEAD) a gigantic diarrhea blowout from Fiala that went everywhere, after I had literally only been eating corn, beans, and ham for the last two days, I about cried. This was after she woke up four times last night itching and crying, and scratching herself bloody. So, is it corn?? Is it pork??? I don’t know. I called my husband and told him, “That’s it. I’m just going to eat beans.” He’s not really supportive of that, but I don’t know quite what to do. I told him I was VERY open to suggestions, if a beans-only diet seemed too extreme for him. Frankly, it’s looking like a good idea to me, if it will heal Fiala. I’m spending so much time taking care of her, and the results are not stellar. She’s still in discomfort or pain a great deal of the time. If we could just get her HEALED by me eating beans 24/7 for a few weeks, then that seems like a fabulous idea right about now.
Martin suggested I e-mail Nancy. On one hand, I don’t want to, because I then feel like a whiny … I don’t know. Whiny complainer, I guess. But on the other hand, I have great faith in the effectiveness of prayer, and the power of the assembled Body of Christ. And, I know that there are some serious warriors in prayer in our church, and it would be a great relief to me to know that they’re praying. We need revelation, and I don’t see that happening, apart from the Holy Spirit. So, I sent the e-mail.
(By the way, I know some of you are tired of reading this — believe me, I’m tired of living it, and my heart is just BREAKING for my little girl who is so snuggly and has a brilliant smile and huge, sparkly eyes, who is just not healthy.)
Well, I’ve reached a point of desperation with Fiala’s health, and I’m asking for prayer. We have spent MONTHS and HUNDREDS of dollars (probably close to $1000 in the last few months on co-pays and prescriptions) to an assortment of doctors, used all sorts of medications both natural and prescriptions, undergone a wide variety of tests, and while we have seen *some* improvement, it’s minimal. She is still having major skin problems and digestive problems.
Literally, the ONLY thing that I know is safe for her is beans, and I’m not kidding. Every fruit, every meat, every grain, every vegetable, every seasoning… it all seems to bother her. Sometimes it’s hard to tell. For instance: we gave her peaches for three days in a row, and she broke out in a head-to-toe rash that lasted for two solid weeks, so it’s hard to tell if the stuff we gave her while she had that rash caused additional problems or not.
She has a long list of things that we know for certain she’s allergic to, but she is still having serious problems. (Things we know for certain she can’t have: egg, soy, milk, rice, potato, garlic, zucchini, carrot, bananas, apples, pears, peaches, coconut, sorghum, onion, mushroom, plus we suspect a number of other things, but she hasn’t yet been tested for them.)
We medicate her skin with FOUR different medications, she’s on two different allergy meds, plus other over-the-counter things for her skin, etc. Plus, as you know, her itchy skin leads to scratching, which leads to infections, which led to antibiotics, which led to the WORST yeast infection I’ve ever seen — she was a solid red, oozy welt from her belly button around to the top of her buns. Bless God, she’s mostly recovered from that.
It’s very time consuming to take care of her, very heart-breaking, and right now, we’re not seeing an end in sight. We’re not even sure if the allergist she’s going to is the right doctor for her, but we don’t know where else to go. Plus, on a basic level, it’s hard to pay a $50 copay for a doctor we’re not even certain is helping her, but where else do we go??? We’ve had 1-3 visits to the doctor each week for the last two months, almost all of them with $50 copays.
Also, it’s hard to care for a husband, a home, four other kids, school, Little League, making meals, etc. Everything is suffering because my time is so extremely involved with Fiala. Or… I catch up on everything else, and end up with not enough time to be faithful on her multitudes of medications for a few days and then her skin is worse than ever. I just don’t have enough time and energy to take care of my family and home adequately. When I have a sick kid, I can drop most everything for a week or two to take care of him or her, but this is going on months and months, and more and more things are undone.
We have another appt w/ the allergist on Monday. I am going to ask him to oversee a strict elimination diet, where Fiala and I literally start with ONLY beans, for every meal, until she’s healthy, then start adding things in, one at a time. Martin thinks this is too extreme, but finding out one thing here, two things there, over weeks and months is not cutting it. We need good information, and we need it yesterday. I don’t see any route right now other than doing something extreme. (By the way, I’m still nursing, and even the doctor agrees that it is likely that even the most hypoallergenic, expensive prescription formula wouldn’t be any better, and it would likely be worse, so anything Fiala has to eat, I have to eat.)
We need wisdom, discernment, and answers, both for ourselves, and for our doctor. We need Fiala healthy. She’s not. Her skin, her digestion… she’s not sleeping well, waking 2, 3, 4+ times a night, itching and crying, and with diarrhea….
We just need help. We need healing. We need prayer. We need the power of God and the revelation of the Spirit. I hate to be a burden to others, but we need the body of Christ.
Call with any questions.
Posted on September 11, 2009, in Allergies, Babies, Christian Living, Christianity, Digestive Woes, Medical Stuff, Motherhood, Sad Things, The Kids, Vineyard Phoenix, Whining. Bookmark the permalink. 17 Comments.