My daughter Fiala is now 19 months, and we’re going backwards… I started decreasing her already super-simple diet, because she’s still having
problems, both digestive and skin. I keep hearing my friend-the-doctor say, “No one is allergic to potatoes,” but I took her off of potatoes about 5 days ago, and her skin is the clearest it’s looked in months. (She doesn’t just get eczema, she gets lesion patches on her face — it’s awful, because then we
have to fight so hard to keep them from getting infected, or dealing with
rounds of antibiotics when they do get infected.)
The bummer about potatoes is that it was the ONE “normal” carb that she
was — I thought — able to tolerate. Potatoes are very portable, too, in all their various forms, which is very handy to be able to bring chips or french fries on the road, in a pinch. AND, the bread I had been making 3-4 times a week for the last… three months or so has potato starch in it, so I stopped making bread, and have returned to farinata.
She can have buckwheat, quinoa, and oats. She can have lamb and turkey. She can have quite a variety of veggies (almost all in the mustard family — includes broccoli & cauli). The only fruits I’m confident she can have are dates, blueberries, and cranberries. She does alright with most beans, especially garbanzos and black beans. That’s about it. She can have a few herbs, but I’m hesitant to try ANYTHING new, no matter how seemingly insignificant it might be. Making dinner is like, “I wonder if she can tolerate sage??” It seems like everything, no matter how tiny, can set her off into tummy upset (she even tells us now, “Ouchy poop!” ) or super-itchy, bloody skin lesions.
I keep trialling things that I think are simple — like apples, pears, chicken… sometimes, it seems she tolerates stuff, and sometimes not. Like right now, I’ve been trying apples for the last couple of weeks — diluted plain apple juice in the morning, unsweetened apple sauce, fresh apple chunks. It appears that she might be all right with apples, because her skin continues to clear… so it seems that potatoes are the culprit, not the fairly new-to-her-diet apples. It is very confusing at times, because even though her diet is so simple, our thoughts are, “Is she reacting to the pear she had this morning? Or the chicken she had yesterday? Or is it something different altogether??”
No corn (which would be SO helpful!), no wheat/rye/barley, no rice…
We’re actually rather without a doctor, because our family doctor dropped us when I decided to stop vaccinating, and I’m hesitant to call my friend
who is a doctor (in another state) because she said so decisively, “NO ONE is allergic to potatoes!” She has asked me many times to “just” feed her more food, but if we do, we pay the price!!! I’m not trying to rebel against her advice, but it’s simple to command, “Try this food! Feed her some more! She just needs a more well-rounded diet!” yet it’s not easy — at all — for us to carry out those simple instructions. Tears, “sad skin,” “ouchy poop,” sadness, confusion, and frustration all the way around… I’m not TRYING to “go it alone” — I would so relish insightful, caring, directive, helpful advice from a doctor, but I really feel alone in her care right now.
My husband has been encouraging me to scale back Fiala’s diet, down to the simplest few things that we know are safe. I prioritize his wisdom and and advice, but at the back of my mind, I know it’s in conflict with the medical advice I’ve been given regarding our sweet daughter, and that’s hard.
I do feel, on one hand, VERY encouraged about her positive response to removing potatoes, but removing them has some pretty serious ramifications, and makes her even more difficult to feed, and that is discouraging.
On the other hand, she is such an absolutely delightful little girl. She’s a joy. Overall, she has a very happy, peaceful personality, and she loves to giggle and play. She is a blessing to everyone in our family. She is sweet. Her eyes are so big and round and grey and beautiful. She can be very determined, but she’s not stubbornly willful like three of my four other children, which is a blessing to The Mom. She learns quickly. She is so cute! Even the way she runs is cute. She’s solid — not quite chunky, but definitely thicker than Audrey ever was. She’s ever hopeful. She’ll ask about something, nodding her head emphatically as she speaks her word or two, willing the other person to say, “Yes, sweet Fiala.” She is quite brave and daring. She loves slides and swings. Everyone in our family adores her, no one ever tires of her company… she is absolutely refreshing. Precious girl.