Daily Archives: November 30, 2010

Fiala/Titanic – Oh God Oh God Oh God!

Sunday, my pastor, Dennis Bourns, had a sermon that wasn’t.  He said that he meant to speak on thankfulness, but instead relayed a number of stories from a recent ministry trip to Northern Ireland.  I’m glad he did.  The theme running through the stories was about depending on God.  He called it something like steering clear of the iceberg, where you can see that your Titanic is definitely heading for disaster, and all you can do is pray, “Oh God oh God oh God!”  Then, He responds, and alerts you, or opens your eyes, to a way out, one that you would not have previously considered.

I needed to hear that.  It seems I can see my ship on the path to destruction, and too many times, I just brace for impact, instead of asking Him to divert the ship, or come up with some sort of Plan B.

Afterward, Dennis asked each of us to participate in a time of corporate prayer, each praying individually for that “iceberg” in our lives.  I prayed for my 11 year old son Grant, who, I’m afraid, is bent on destroying himself and taking down as many people as possible with him.  That’s a “gift” of motherhood, by the way:  Extrapolation — perceiving events the events of today, and envisioning a possible/likely future if things proceed down the current path.  That can be both a blessing and a curse.

I asked my hubby what his was, and he said, “Fiala.”  I do understand that.  A day or two previous, he called her situation “distressing.”  It is.  She’s in the middle of the worst outbreak she’s had in a year.  Head to toe with eczema — BAD every-square-inch-of-her-body-covered, sandpapery, intensely itchy eczema — and on top of that, it got infected (impetigo), so now she’s on antibiotics (Septra).  In addition, she’s broken out with a different kind of rash…  I think it might be related to the impetigo, but I’m not sure.  It looks different than her “standard” eczema, larger, redder papules.  She is absolutely miserable, and it’s heartbreaking.  Right now, we’re totally praying, “Oh God oh God oh God,” because we simply don’t know how to proceed.

For now, in addition to

  • Septra
  • Various topical remedies (including olive oil, Vaseline, and bacitracin — when she can handle it, because when her skin is really raw, it stings too badly)
  • Hydroxazine for itching (which seems to work, but also makes her giddy/hyper)
  • Bleach baths 2-4x/week (the doctor we saw at the urgent care center said to do it every day for the next week or two, but that’s too irritating to her skin),

we’re taking her diet down to “bare bones” as my hubby calls it — the foods that we know are the least likely to cause a skin reaction.  That means lamb, garbanzo beans/flour, oats, blueberries, all the veggies of the brassica family, olive oil, cinnamon, and stevia.  That’s it.  On one hand, that sounds like a lot of food — and it is definitely enough food on which to survive.  But, on the other hand, it is a very simple diet for a sweet little two year old girl who loves to eat, and she spends a lot of her day asking for food (food other than what she can have) and feeling left out, often crying over missed food.  Obviously, the things that are hardest for her to understand are foods that we’ve previously OK’ed, but are now taboo, particularly maple syrup, honey, and a wee bit of sugar (like in her all-blueberry organic jam).  It’s hard to say no.  I caved and gave her cranberries on Sunday, and she paid a dear price for it on Monday.  I had been thinking that her previous bad reaction to cranberries was tied to the corn syrup in Craisins.  So, I got a variety from Trader Joe’s that is sweetened with real sugar.  She was SO VERY MISERABLE on Monday (yesterday)… that did it.  I have buckled down on her bare bones diet, with no risks allowed.  Already today, she’s doing better than yesterday, although only nominally so.

I’m thinking a trip to the pediatric g.i. doc is in our future.  My hubby hasn’t been much in favor of that, since, in the last year, I’ve done a good job of managing her care, and Doctor Mama doesn’t cost a $50 specialist co-pay.  But, I’d been considering it anyway, as Fi doesn’t appear to be making any improvements, digestive- and skin-wise, and I’m feeling rather lost without some doctoral care.  And, these last two weeks (when her skin has gotten awfully terrible again) has rather spurred me on to re-prioritize finding a doctor for her.  I mean, I haven’t made a appointment or anything yet.  But, I’m thinking that we’ll need to take that step.

%d bloggers like this: